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Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. Participants still visited 16 Median places out of a possible total of 24, and they had abandoned 5 Median places.
Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia.
The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity. The Convention on the Rights of Persons with Disabilities United Nations, states that regardless of disability, every person has the right to full participation and inclusion in society, including but not limited to participation in political and public life article 29 and cultural life, recreation, leisure and sport article Nowadays, with more people being diagnosed with dementia in an earlier stage Dubois et al.
However, research has shown that going out of the home to different places for different activities may be challenging for people living with dementia Brorsson et al.
